Monday, 22 October 2018

Where did that bus come from?

I'm now 6 days post treatment.  When they tested my blood prior to the last dose the cells were virtually non existent already, so I'm fairly sure the last day of treatment finished off any that were left.  So begins the long hard task of growing a shiny new immune system.  Rather than thinking in terms of how many days post treatment I like to think of it as my new immune system being 6 days old. 

Any one who has been pregnant will vouch for the fact that growing a new human being from scratch is very tiring indeed.  Well I can confirm that growing a new immune system is very tiring too.  Making lots of those new blood cells in a hurry is exhausting, its also quite painful at times too.  Who knew?  When you make them at a normal rate you just don't even know its happening.  But when your bone marrow is on overtime it lets you know about it I can tell you.  It causes pain right inside your bones.  That's not to mention the headache from hell if you don't drink enough, and by enough think twice as much as usual!!

So I finally managed to escape from the hospital on Wednesday afternoon.  It was an interesting day.  Lots of conversations about blood sugars and what should be done, as they hadn't reached anywhere near the holy grail of the single figure target that had been set.  They still haven't.....

The decided to get the diabetes team to see me, so after seeing the MS nurse and the diabetes nurses the decision was made to start me on insulin.  Prescriptions were requested and I was eventually taken to the discharge lounge to wait to see the diabetes nurses again to learn all about what I would have to do.  She arrived with a bag full of leaflets, a sharps box, needles etc and proceeded to give me a whistle stop tour of how to use the insulin pens and how to inject myself.  My head was spinning by this time, I was exhausted and just needed a lie down.  But not yet, my lift arrived, I was handed 2 bags full of medication and released into the world. 

I was so glad to be home, in my own bed.  I'd had 3 hours sleep in the last 2 nights, and probably only about 10 hours in the whole time I was there.  I'm not quite sure how I'd kept going up to that point.  Steroids?  Adrenaline?

Whatever it was deserted me over night, and the next day I felt like I'd been hit by a bus!  Still do! Even the simplest thing like brushing my teeth leaves me needing a lie down to rest.  It's crazy.  I feel like I'll never feel normal again.  I will, I know that, it will just take some time, and a lot of water.  These shiny new cells had better be worth all the effort and behave themselves.

Thank you to everyone for all the support you have given me over the last few weeks, it means more than any of you will ever know.  It's like having my own little Lemmie Army!


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